The Canadian Autism Partnership Project (CAPP) has launched a national online survey to explore how a Canadian partnership could improve the autism landscape in this country.
“Autism is a complex health, social and economic issue that requires urgent action. A national partnership is critical to ensuring efficient, effective solutions are put in place to address what is being called a health crisis in this country,” says CAPP Chair Cynthia Carroll.
The survey, which will run until June 30th, will gather information and insight from individuals with autism, their families, service providers, researchers, government leaders and others about the need for a national partnership and the structure this might take.
“This project is vital to the health and well-being of Canadians living with autism,” says Carroll. “A national, collaborative partnership will provide a systematic approach to tackling the most complex issues affecting Canadians living with autism including early detection and diagnosis; treatment and support across the lifespan; education, training and awareness; attachment to the labour force; community living; and impact on caregivers. This partnership will focus on the systemic barriers and potential solutions, building on innovation and evidence.”
Responses from the survey, the first of its kind in the country, will be used to inform a business plan CAPP is preparing for the federal government. This plan will spell out how a national partnership could improve conditions for Canadians living with autism, their families and their caregivers.
"We need help from Canadians to develop the plan,” says Carroll. “We need to know the obstacles and opportunities people face. For any partnership to be effective, we need your input."
Autism now affects 1 in every 68 children in Canada. A national partnership is essential to ensure that individuals living with autism can achieve their fullest potential in a system that effectively anticipates and consistently addresses their needs. The partnership will provide a portal for information and research and a place where cross-sectoral collaboration and innovation can happen.
This initiative is being led by the Canadian Autism Spectrum Disorders Alliance (CASDA) and funding is provided by the Public Health Agency of Canada. Its purpose is to conduct a cross-country consultation that will result in the creation of a business plan for a Canadian Autism Partnership. The plan will be completed by March 31, 2017.
The survey can be found online at https://www.capproject.ca/index.php/en/have-your-say.