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  • 2020 IASSIDD Conference Invites Abstract Submissions

  • November 26, 2019
  • Adults with intellectual and developmental disabilities (IDD) have a right to healthcare that meets their specific health and developmental needs. As members of the health sector,  the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) Special Interest Research Group are actively exploring the nature and extent of the inequalities often faced by this marginalized group.

    To bolster these efforts, IASSIDD Special Interest Research Group and Surrey Place are hosting 20/20 & Beyond, a two-day conference that will raise awareness, increase knowledge and connect policy and practice to improve the health of individuals with IDD. 

    This annual conference comes back to Canada after 11 years. It will be held from June 16 – 17, 2020 at the University of Toronto Chestnut Conference Centre in Toronto, and welcomes participation from a range of interested groups including researchers, public health professionals, policy-makers, disability service providers, health care professionals and advocates.

    Currently, they are inviting abstract submissions about the health of people with IDD through the lifespan, including research related to transitions and supported decision-making in health care, disease prevention and health promotion, chronic conditions, ageing, mortality, health systems, and health policy.

    Call for submissions closes on February 1, 2020. For more information, visit: www.iassiddhealthsirg2020.com.


  • Dr. Shooshtari awarded at IASSIDD for research paper

  • August 24, 2018
  • Congratulations to Dr. Shahin Shooshtari on receiving the highly commended award for her paper on “Aging with intellectual and developmental disabilities in Manitoba”. She received the award while at the 5th IASSIDD (International Association for the Scientific Study of Intellectual and Developmental Disabilities) European Congress in Athens, Greece this summer.

    The research paper found that of the 8,655 Manitoban adults with intellectual and developmental disabilities (IDD) identified, 8.1% had an indication of dementia in their medical records; three times greater than that found for those without IDD (2.6%). More than 17% of Manitobans with IDD aged 55+ years had an indication of dementia, which was nearly twice the rate reported previously. The paper recommends increased dementia screening and supports for aging individuals with IDD.

     


  • Participants Needed For Research

  • July 24, 2018
  • Participants Needed For Research Study on the Effects of a Mindfulness-Based Training Program on Behaviour Intervention Procedural Fidelity.

    Are you an Autism Tutor working in the classrooms?

    • We are seeking Autism Tutors from St.Amant Autism Programs
    • You must work in an autism classroom OR at a daycare centre
    • You must also have at least 3 months of experience working as an autism tutor (anywhere).

    What is the study about?

    • The purpose of this research is to learn whether a mindfulness-based training program tailored for employees helps them to apply Discrete-Trials Teaching procedures more accurately.
    • The mindfulness training program aims to improve several facets of your job performance and well-being, which may also benefit the children served.

    What is involved?

    • You will complete mindfulness training sessions facilitated by Dr. James Ediger and Brendan Boehr, which will consist of three group sessions (each one half-day; a total of 9 hours) over a period of up to approximately 5 weeks.
    • Trained research assistants will observe you conducting DTT in the classroom for approximately 30 minutes a day, 5 days a week.

    What are the benefits of participating?

    • You will receive an honorarium of $178. Specifically, you will be paid $25 for completing this consent form and subsequent questionnaires. In addition, you will be paid $51 (i.e., $17/hour for 3 hours) upon completion of each of the three mindfulness sessions.
    • Upon completion of the mindfulness training, you will receive a certificate of completion which will be reflected in your St.Amant employee file.

    To learn more about this research opportunity, please contact Sophie Robitaille at robitais@myumanitoba.ca or 204-723-0145

    Research Supervisor: Dr. Toby Martin Director St.Amant Research Centre, Assistant Professor, Department of Psychology University of Manitoba

    Student Researcher: Sophie Robitaille Master’s student, Psychology Department University of Manitoba

    This study has been approved by the University of Manitoba Psychology/Sociology Research Ethics Board and the St.Amant Research Review Committee.

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  • Online survey: Quality of life of children with autism

  • August 8, 2017
  • QoL Study picture
    CLICK HERE TO TAKE THE SURVEY

    The University of New Brunswick is conducting a study examining the well-being of school-aged children with autism spectrum disorder (ASD). We invite you to participate in this study.

    If you choose to participate, you will complete an online questionnaire. The survey takes most people approximately 20 minutes to complete all of the questions. You will be asked to complete demographic questions and questions about the child’s autism symptoms, behaviours, functional skills, task persistence, parent’s mental well-being, sibling type, school type, reciprocal friendships, and participation in activities.

    You may choose to enter into a draw for one of five chances to win $20.00 USD . Your answers will provide important information for helping professionals to better understand the quality of life of children with ASD.

    This study will not collect any personal information such as your name or address. All information will be kept strictly confidential. The data are stored on a secure server on the University of New Brunswick website. The server is protected by a firewall. Data will be stored on password-protected computers that only the researchers have access to.

    Participation is completely voluntary.You may choose not to answer a specific item and continue with the questionnaires. You may also choose not to continue the study for any reason at any time by closing your browser. Your data can only be used by the researchers after you click the submit button at the end of the survey.

    If you have questions at any time, please contact Mandy Fulton at t533z@unb.ca, or Dr. D’Entremont at bdentrem@unb.ca

    This project is on file with the Research Ethics Board at the University of New Brunswick (REB#2016-125). If you have questions or concerns about your rights or treatment as a participant please contact the Chair of the UNB Department of Psychology Ethics Board at rhamilto@unb.ca.


  • Bridging the gap: from evidence to improved health for persons with intellectual and developmental disabilities

  • November 16, 2016
  • The International Association for the Scientific Study of Intellectual and Developmental Disabilities, Ulster University & Health SIRG presents:

    Bridging the gap: from evidence to improved health for persons with intellectual and developmental disabilities

    Hilton Hotel, Belfast, Northern Ireland

    June 19-21, 2017

    For information, please contact

    Dr. Laurence Taggart: l.taggart@ulster.ac.uk

    Full details of conference to follow shortly.