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  • Online survey: Quality of life of children with autism

  • August 8, 2017
  • QoL Study picture

    The University of New Brunswick is conducting a study examining the well-being of school-aged children with autism spectrum disorder (ASD). We invite you to participate in this study.

    If you choose to participate, you will complete an online questionnaire. The survey takes most people approximately 20 minutes to complete all of the questions. You will be asked to complete demographic questions and questions about the child’s autism symptoms, behaviours, functional skills, task persistence, parent’s mental well-being, sibling type, school type, reciprocal friendships, and participation in activities.

    You may choose to enter into a draw for one of five chances to win $20.00 USD . Your answers will provide important information for helping professionals to better understand the quality of life of children with ASD.

    This study will not collect any personal information such as your name or address. All information will be kept strictly confidential. The data are stored on a secure server on the University of New Brunswick website. The server is protected by a firewall. Data will be stored on password-protected computers that only the researchers have access to.

    Participation is completely voluntary.You may choose not to answer a specific item and continue with the questionnaires. You may also choose not to continue the study for any reason at any time by closing your browser. Your data can only be used by the researchers after you click the submit button at the end of the survey.

    If you have questions at any time, please contact Mandy Fulton at t533z@unb.ca, or Dr. D’Entremont at bdentrem@unb.ca

    This project is on file with the Research Ethics Board at the University of New Brunswick (REB#2016-125). If you have questions or concerns about your rights or treatment as a participant please contact the Chair of the UNB Department of Psychology Ethics Board at rhamilto@unb.ca.

  • Bridging the gap: from evidence to improved health for persons with intellectual and developmental disabilities

  • November 16, 2016
  • The International Association for the Scientific Study of Intellectual and Developmental Disabilities, Ulster University & Health SIRG presents:

    Bridging the gap: from evidence to improved health for persons with intellectual and developmental disabilities

    Hilton Hotel, Belfast, Northern Ireland

    June 19-21, 2017

    For information, please contact

    Dr. Laurence Taggart: l.taggart@ulster.ac.uk

    Full details of conference to follow shortly.

  • Canadian Conference on Developmental Disabilities and Autism: Call for Papers

  • November 15, 2016
  • CCDDA 2017

    The Canadian Conference on Developmental Disabilities and Autism, presented by St.Amant, is an annual gathering intended to bring together a range of people committed to enhancing quality of supports and services for people with developmental disabilities and autism.

    Join us in 2017 as we celebrate 25 years of this educational and inspirational event. A list of presenters and program will be up within the next few months. Registration opens in early 2017 at www.ccdda.ca.

    Call for papers

    You have knowledge, information and best practices to share and we have a group of 550+ conference delegates that will find your presentation valuable. Our conference participants are looking for innovative trends, real-life examples and clear information relevant and applicable to the work they do every day. Submit your application by November 30, 2016. CLICK HERE to download the application form.

    Conference Learning Objectives

    Promoting Inclusion & Full Citizenship – This conference provides a forum for leaders and supporters to come together and explore successes, challenges, and reflections on promoting full inclusion for people with developmental disabilities. Encouraging and advocating for all people to claim their right to full citizenship must remain a priority. We strive to showcase examples of person-centred supports, collaboration, and advocacy that lead to success in these areas.

    High Quality Health & Clinical Supports – Improving the supports and services for people to manage and advocate for high quality health and wellness remains a central theme at this conference. Sessions led by experts in health and clinical services will be geared towards providing appropriate and collaborative supports to people and their families.

    Leadership Excellence – We intend to deliver opportunities to develop skills at all levels in an organization. Our sessions will provide participants with specific tools to manage common leadership challenges, consider the impact of personal leadership styles, and approach situations in a strategic and collaborative manner.

    CCDDA 2016 pic

  • Seeking input from parents of children with autism about experiences of support

  • July 14, 2016
  • A York University study is looking to hear from parents of children with autism about the kinds of social support they receive and want. We know that social support can be immensely helpful for families, and the research shows a link between good support and lower levels of stress, anxiety, and burden. This support may come from friends, family, co-workers, neighbours or formal services like the ones provided by St.Amant.

    While we know social support is helpful, we still have questions and there are gaps in the research. We know very little about the factors that can help promote social support for parents. Who receives solid social support? Who is at risk of being isolated or disconnected from a social support network? How can we foster these social connections?

    This study aims to answer these questions. This work is led by Suzanne Robinson, a doctoral student in the clinical-developmental psychology program at York University, along with her supervisor, Dr. Jonathan Weiss.

    What does this study involve?

    Parents can participate by completing an online questionnaire (paper copies are also available). This questionnaire takes about 30 minutes to complete. Parents are also invited to complete shorter follow-up questionnaires 6 and 12 months later if they are interested. Participating parents are entered in a raffle for $50 gift certificates, as thanks.

    Who can participate?

    Any parent of a school-aged child with a diagnosis of autism, living in Canada. The person with autism needs to currently be between 5 and 18 years of age.

    Participation is absolutely voluntary and your decision to not participate will not influence your relationship with the researchers, York University, or St. Amant. This research has been reviewed and approved by St.Amant’s Research Ethics Board, and York University’s Ethics Review Board, and conforms to the standards of the Canadian Tri-Council Research Ethics guidelines.

    If you have any questions or would prefer a paper copy of the survey, please contact Suzanne Robinson at srobinso@yorku.ca or 416-736-2100 ext. 44032. You can see more work being done by this research lab by visiting their websites at http://ddmh.lab.yorku.ca/ and http://asdmentalhealth.ca/.

  • The Impact of Autism Service Intensity on Children’s Outcomes

  • March 17, 2016
  • St.Amant Research Centre examined archival data of a community-based early intensive behavioural intervention program to determine the effect service intensity has on outcome measures in different domains for children with autism spectrum disorder. Overall, we found that children showed significant improvements after one year of early intensive behavioural intervention service, and that treatment intensity may influence outcomes even at relatively high levels.

    Read more in our latest Research Rundown project summary.