January 19, 2017
What is this research about?
What did the researcher do?
Forty-three adults with autism (mean age=31, 63% female, no intellectual disability) were recruited from an outpatient clinic and 44 controls (people without autism that were the same gender and age as the autism group) were recruited via media advertisements. Participants completed a survey about their demographics, health and ability to function in the following areas: understanding and communicating (cognition); getting around (mobility); self-care (ability to attend to personal hygiene, dressing, and eating, and to live alone); getting along with people (social and interpersonal functioning); life activities (household and work or school activities); and participation in society (participation in family, social, and community activities). They also completed a survey about their quality of life, which combined different domains to create a single score summarizing their overall sense of well-being. The researchers looked at how demographics and functional ability were related to well-being.
The researchers found that adults with autism had more self-reported impairments and less life satisfaction than the adults without autism. Areas that had more impairments involved interaction
with others: understanding and communication, getting along, and participation in society. However, practical daily living skills (e.g. getting around, self-care, household activities) were not different between the groups. Out of all these areas, the only factor that was related to life satisfaction in adults with ASD was participation in society. The changes in participation in society accounted for 49% of the difference in life satisfaction. Other challenges did not impact life satisfaction in this study.
How can you use this research?
Interventions for adults with ASD need to ultimately enhance their well-being. Since societal inclusion was the main factor that increased quality of life for adults with autism, programs that include inclusion by shared interests as well as face-to-face interactions may be beneficial. Further research using a larger sample will be needed to see if differences due to outcomes such as jobs, income, leisure and housing affect well-being.
Adults with autism have more challenges in various domains of function and less life satisfaction overall. However, participation in society was the only domain that had an impact on life satisfaction in those adults.
Lilly Schmidt (PhD) is from the Berlin School of Mind and Brain at Humboldt University and associated with Freie Universitat in Berlin, Germany.
Jennifer Kirchner was a PhD student and the lab manager of the Social Cognition research group at the Berlin School of Mind and Brain at Humboldt University and associated with Freie Universitat in in Berlin, Germany
About the Chair
The Chair in Autism Spectrum Disorders Treatment and Care Research is dedicated to studying ways to improve the mental health and well-being of people with Autism Spectrum Disorders (ASD) and their families in Canada.
The Chair is funded by the Canadian Institutes of Health Research in partnership with Autism Speaks Canada, the Canadian Autism Spectrum Disorders Alliance, Health Canada, Kids Brain Health Network (formerly NeuroDevNet) and the Sinneave Family Foundation. Additional support was provided by York University.
For more information, visit the Chair in Autism Spectrum Disorders Treatment and Care Research website at asdmentalhealth.ca
Kathrin Ritter (PhD) is at Charite – Universitatsmedizin Berlin
Stefan Roepke (MD) is a senior psychiatrist at the Department of Psychiatry at Charite – Universitatsmedizin Berlin.
Isabel Dziobek (PhD) is a professor in social cognition from the Berlin School of Mind and Brain at Humboldt University and associated with Freie Universitat in in Berlin, Germany.
Schmidt L, Kirchner J, Strunz S, Brozus J, Ritter K, Roepke S, Dziobek I (2015) Psychosocial Functioning and Life Satisfaction in Adults With Autism Spectrum Disorder Without Intellectual Impairment. Journal of Clinical Psychology 71, 1259-1268.